Tuesday, May 6, 2008

Still On the Roller Coaster!

The surgeon called yesterday evening and we have a concensus, at least between him and the female doctor. They think it is most likely an autoimmune disorder. So, no surgery, no blood donation...at least not for the time being. I asked him how he could suddenly think there was nothing there based on one test...he said he's not a radiologist, that when he meets with the radiologist and the radiologist says, "This is a tumor", he just says okay and takes it out. He said he thought all the lumps looked like just more pancreatic tissue, but the radiologist said it was a tumor. At least he's honest!!

So we go for another MRI, and more blood work soon...we are waiting on the appointment clerk to call. They have to be sure!

So, depending on the kind of autoimmune disease we are looking at, it could be very, very good news...most of them are treatable, she would probably need to be a vegan for the rest of her life, but she could start having nuts and seeds and some oils and tofu. Her life expectancy would be around 60, instead of in her teens to 20s and she won't have the world's largest scar on her stomach to prove how cool she is.

We go see the doctor who thinks it is cancer on the 21st. The most recent blood work should be back by then and we'll see if we can get a third person on board!!

I am at the point where I'm having trouble letting myself believe it. Every time I think things are great, they get really terrible again in a couple of days, then they go back to being good again, and so on, and so on.

Glad there are still some people on the roller coaster with us!! It's been a wild ride, more like Space Mountain...roller coaster in the dark where you can't see the end.

5 comments:

LEslie Bradner said...

What a bumpy roller coaster you are on. Wow! We will be praying the news just keeps on getting better and better and that there is no surgery insight for Aspen.

ConnieK said...

Amazing! Still fighting the fight with you!
Connie

Robyn said...

Maybe we'll have to start doing, "Dinner... Vegan style" recipe swaps and other fun auto-immune alternative care treatments. It could be fun!

Robyn

Anonymous said...

Yey hoo!!! What a great Mother's Day for you. It's okay at times to just enjoy today and let tomorrow not even exist. But no letting down on prayers here.

Sal

Unknown said...

Hey, first time I have ever posted, anywhere. How does it know me. Anyway, wanting you all to know that I have been praying for Aspen, and all. And I will keep praying. Isn't it exciting to see what God is doing. Keep the faith.