The perfect smoothie is fat free soy milk, ovaltine, tons of ice and protein powder! I can also tell you that the perfect smoothie for Aspen does not involve bananas or berries...has to be chocolate! Silly me.
Yesterday was the first day that Aspen was actually hungry in over 10 days. She was hungry all day!! It's hard to get enough calories on her diet. The doctor wants her to eat about 3000 calories a day to gain weight. Most of her food is 50 to 75 calories per serving...that's about 50 servings of food per day!!
She probably ate 30 yesterday though!! Hurray!!! She has lost 8 of the little 88 pounds on her body. We are striving to just keep the pounds on, even if she doesn't gain, she just can't keep losing.
We got the protein powder night before last and have been struggling to hide it in things ever since! It's kind of sweet and vanilla flavored, so it just isn't really compatible with bullion, cucumbers (her favorite veggie), other veggies or soup. It really only disguises well in sweet things....even tried to make popsicles with protein powder and juice. That was gross!
I had been looking all over the internet for low fat protein powder, called health food stores, and I found it at (drumroll please)....Costco!
Aspen's follow up appointment with the doctor is next Wednesday, we are waiting for the orders for the follow up CT scan and the referral to the Children's Hospital, it's looking like we won't have those until Monday.
Aspen continues to not know how serious this is, we haven't told her. She just knows she is sick and has to get well. We had a big discussion about the tests coming up...I explain what's next, she says, "I hate needles. I hate doctors." Please pray that we get referred to a very gentle, personable doctor at the Children's Hospital who is also a leader in their field and very aggressive about treatment. The two don't always go together, but that's what we need!
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4 comments:
So I just checked my email today for the first time in a while...what exactly is going on w/my Aspen? I didn't read all the blogs yet b/c I got to concerned and impatient to know what's going on. Can you give me the really brief version of what she has and how it's going to be treated?? tell her i miss her, and I miss you guess too! I hear you have a new pig in the house. I bet it's keeping Aspen company right now. :)
-Suzanne
Protein powder and juice...."does" sound pretty disgusting.
Still praying for you all and knowing God is going to take care of you.
And I thought I would let everyone know that Cierra really can dance a jig....and she doesn't have two left feet!
love you all
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