This weekend was intense...there was event after event that the girls needed to be shuttled to, there were meetings galore for myself and Ken, there was the wacky diet thrown into the mix, and there was a wonderful Sunday with friends at church that was SO good and SO tiring. Sunday night we were all tired by 8pm, Ken slept on the floor, Aspen and her friend Steffi were piled in pillows on the couch half asleep, Cierra was curled in the afghan in the big chair...it was cozy!
Sunday was a breakthrough day...lots of prayer, lots of emotional sharing and caring. And Monday arrived....
More Good News!!! The doctor called first thing, and after visiting and finding out Aspen is really controlling what she eats and hasn't had any pain in a while he is moving her next CT scan to Friday the 28th instead of this week. It's kind of frustrating because I want to know NOW, but it's really good that he thinks she's doing really well and we can wait that long. He wants to be sure it's shrinking or not to get a solid diagnosis.
He thinks the pancreas digesting itself is really the diagnoses. This is "thinks", we won't "know" until the first of April after the scan. We are working on the paperwork part of the referral to the Children's Hospital and will have to wait until they call us with an appointment. More waiting.
We are hoping the specialist will be able to tell us what the extent of damage is to the pancreas. It would be nice to know "why", but since we know how to prevent it...eat a fabulous fruit and veggie diet...I'm not sure exactly how important "why" is at this point. So finding out the extent of damage will tell us how long we can expect her pancreas to continue functioning. I hadn't really wanted to put this on paper, but it seems important for people to know and it really kind of lets you know where we are....
50% of all kids who's pancreas digests itself to form a tumor live longer than 7 years
Here is the disclaimer...I am not of this world, just in it and I reject it's statistical data, but would be foolish to ignore it. My glass is more than half full, and my cup is running over...THANK YOU everyone for the cards and letters, gifts, support, emails, calls, e-cards, hugs, great stories of encouragement and survival, recipes, research, questions, caring, understanding, shared tears and most of all prayers.
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2 comments:
Al,
We have a food delivery company here called Schwann's. They have this fabulous fruit and veggie salsa. Do ya'll have anything like Schwann's there? I can get a package and ship it to you for her to try out. Also, if she wants to talk to Kaye give us a call. Kaye has had to deal with doctors all her life and talking to another her age who has delt with hospitals and docs may help. they can email each other.
Hey Aspen!!! GREAT NEWS!!!! I'm still praying for you!!!!
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